![]() ![]() Then on August 17, the state’s Supreme Court temporarily blocked the six-week ban and the law reverted to abortion being “prohibited when probable post-fertilization of unborn child is twenty or more weeks.” Why a woman's doctor warned her not to get pregnant in Texas Sometimes the way they get healed is to be free in heaven.” “When I prayed for healing – sometimes that healing does not happen on this earth. “The best option to protect our daughter from pain and suffering was to send her to heaven,” Jill said. “Jill and Matt were so thoughtful with everything.”Īfter prayer, research and discussion, Jill said her “mother intuition” told her that “the best thing for her was to give the peace of not having pain and suffering.” “Our goal is to provide all the information families need to make their decision,” said Paige Babb, the prenatal genetic counselor who worked with the Hartles. They researched hypoplastic left heart syndrome, talked to another family who’d been in their situation and asked questions of their care team at the Medical University of South Carolina. “I grew up in a very Christian conservative household,” Jill said. ![]() Heather Woolwine, a spokesperson for the Medical University of South Carolina, where Jill got her care, said that “the mortality rate associated with Hypoplastic Left Heart Syndrome is high in the first year of life and severe complications plague most survivors.” “And they’re going to need a lot of high-level medical care their entire life.” “We’re basically talking about a child who’s going to have, at best, a chronic medical condition that limits their cardiac output,” he said. Joseph Forbess, surgical director of the Children’s Health Program at the University of Maryland Medical System, said in his program, most parents opt to terminate when the fetus has hypoplastic left heart syndrome. Pediatric heart doctors say patients often choose that option. In states with less restrictive abortion laws, doctors can offer a third option: terminate the pregnancy. These surgeries are not a cure, and even after the three procedures, these children may need a heart transplant, according to the US Centers for Disease Control and Prevention. Babies with hypoplastic left heart syndrome who do survive the first surgery then have another open-heart procedure at around 6 months old, and a third before age 4. The second option was that Ivy could have an open-heart surgery in her first week of life, but Jill says her doctors warned that she likely wouldn’t survive it. Travel time to abortion facilities grew significantly after Supreme Court overturned Roe v. Gina Ferazzi/Los Angeles Times/Getty Images Matt, 40, a cellarman at a local brewery, says that when he saw Jill walk into the reception, he turned to his mother and said, ” ‘There she is! That’s the one!’ ” In 2012, at a mutual friend’s wedding, Jill met Matt, a college football coach who’d moved back home to Charleston three days before. Jill, 35, grew up in the town of Moncks Corner, South Carolina, going on retreats with her Christian youth group and attending sleepaway summer Bible camp with her twin sister. However, I remain committed to protecting the lives of children from those who would choose to end those lives.”Īs the Hartles told their story to CNN, Matt’s hand rested on his wife’s knee, comforting her as she remembered the emotional details. Larry Grooms, said, “I regret to hear about the (Hartle) family and of their baby with a heart defect. The primary sponsor of a Senate bill, Sen. “There are so many of their constituents who do not want (a six-week abortion ban), and I need the Republican party to understand that, because I do think it will ultimately alienate some of their conservative (constituents) and then they in fact will then vote across party lines.”ĬNN reached out to sponsors of South Carolina legislation that restricts abortion rights. “I got messages this fall – ‘I’ve never voted blue in my life, but I decided to vote blue because of your, Matt and Ivy’s story,’ ” Jill said. The Ivy Grace Project is just a few months old, but Jill says already it has had an impact. “It’s not fair for the government to tell you what you should or should not do,” Jill said. The Hartles, who say they’ve always supported abortion rights, have now formed the Ivy Grace Project, named after their daughter who died, to educate the public and policy makers about fetal anomalies, which are often detected four or five months into a pregnancy – too late in states like South Carolina to terminate a pregnancy. Maternal and infant death rates are higher in states that ban or restrict abortion, report says Shot of an unrecognizable pregnant woman sitting on a bed and holding her belly in her bedroom at home PeopleImages/iStockphoto/Getty Images
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